Imran, a 4 years old child with history of stidor since birth secondary enlarged tonsilis, had cardiorespiratory arrest on 27th July 2011 while undergoing tonsillectomy, since then the patient was quadriplegic and mute. Following the acute cardiorespiratory event, he had complicated medical history including hypoxic ischemic encephalopathy, regression of developmental and motor milestone, hypertonia and dysphagia. Imran can’t eat, can’t talk, and can’t walk any more. He depends on PEG Tube for enteral feeds. The family has been advised and is planning to take Imran for intensive rehabilitation (physiotherapy, speech therapy and feeding support services) to Rehabilitation Institute of Chicago (RIC), American’s number one and world’s best rehabilitation institute.
Imran had cardiac arrest on operating table on 29th July 2011 and ever since he has been admitted in intensive care unit (ICU), due to Severe Spastic Cerebral Palsy which has been caused by deprivation of oxygen to the brain (Hypoxic Ischemic Encephalopathy) during induction of anesthesia at Muhimbili National Hospital (MNH) in Dar Es Salaam Tanzania. Imran was born on 01st of March 2008 in Morogoro Tanzania.
At the age of four years, he had normal growth and developmental milestones. Imran was a charming and inquisitive boy; he was amazing joy and truly a gift from the God. Unfortunately he had a fairly minor problem of snoring while sleeping. Mid July 2011, after thorough medical examinations and investigations the problem was diagnosed by ear, nose and throat (ENT) specialist to be inflammation of the adenoid tonsils in the throat known as Adenotonsilits. The ENT specialist planned for a definitive treatment called Adenotonsilectomy which is fairly straight forward and short surgery.
In 29th July 2011, Imran was admitted at MNH for the surgery which necessitated general anesthesia. However difficult airway intubation was experienced in the course of anesthesia induction which led to deprivation of oxygen (hypoxia) and he led to cardiac arrest. After a concerted resuscitation effort the patient was revived. Imran was then admitted to MNH ICU for respiratory support and close monitoring. Imran had several episodes of convulsion/twitching to which several doses of Diazepam and Phenobarbitone were given with good result.
He regained spontaneous respiration after three days in ICU and on 15th August 2012 a tracheotomy was done to clear excessive secretions and keeping an airway patent. Unfortunate, nine weeks after the cardiac arrest on the operating table he was found to be having spastic quadriplegic. A neurosurgical review and Computer Tomography (CT) Scan revealed feature of global cortical and basal ganglia ischemia, which means there is poor blood supply to the brain. This finding is in keeping with an imminent Cerebral Palsy to Imran. On mid November, the tracheotomy was sealed. The second CT scan was done on December 2011, which upon review confirmed Cerebral Palsy in this young boy (I am so sorry and heartbroken!).
This meant that Imran will be permanently bed ridden. In summary, Imran stayed at MNH ICU for more than seven months and all this time he still had his principle problem of adenotonsils, because the operation was never done due to cardiac arrest and given the nature of his health the operation seems more complicated. On Tuesday 06th March 2012, Imran accompanied by his mother was then referred to Appolo Hospital in Hyderabad India for further management. Imran was admitted at ICU in Appolo hospital and we thank God that adenotonsilectomy surgery was successfully done on mid March 2012. Additionally at Appolo Hospital a surgery to put a feeding tube directly to the stomach and Positron Emission Tomography (PET) CT Scan under anesthesia was done simultaneously. Thank God the two went very successfully. Imran needs continous caring and some medicines. Imran cannot move, cannot talk and cannot eat by himself, only use PEG tube for enteral feeds. And require regular physiotherapy To sum up, Imran stayed at ICU for more than ten months and it has been a challenging and trying moment of our life. But always we have put our faith and hope to Almighty God.
Truly life has never been the same to us and it has taken a heavy toll on my dear wife. Doctors attending him told us that Imran will be in continuous medication for the rest of his life. It is a grim of thought. The family is planning to take Imran for intensive rehabilitation (physiotherapy, speech therapy and feeding support services) to Rehabilitation Institute of Chicago (RIC), American’s number one and world’s best rehabilitation institute.
However, Imran needs special feeds Peptamen Junior (120ml), every three hours from 6am to 9am, with continue medication (splints, Baclofen, Duphalac Syrup, Syrup vitamin A to Z, Tonoferron drops, Levolin inhaler, CPAP during sleeping, annual sleep study for CPAP titration, and regular blood tests). Imran also needs physiotherapy equipment includes special seating stroller, standing frame, bobath plinth etc. his need is great, the family has set up this website to assist him in staggering enormity of expenses beyond family’s capacity.
With your generosity and support emotionally and financially Imran will restore his hope.
Thank you very much for your support.
FOR MORE INFORMATION CLICK THIS LINK HERE
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1 comments:
Learning that your child has a life threatening illness is difficult enough, but it gets worse when the bill comes. Medical problems can cost hundreds of thousands of dollars and the insurance company isn't likely to cover everything, leaving a huge bill to be paid. To help pay for your child's medical expenses, here are some fundraising ideas.
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